Laura Phipps – Head of Communications, Alzheimer’s Research UK and Director of External Affairs, Early Detection of Neurodegenerative diseases (EDoN) Laura Phipps is Head of Communications at Alzheimer’s Research UK. She leads a multidisciplinary department across PR and media, human stories, science communication, insight and messaging development, and oversees the delivery of communications campaigns. She […]
Influencing and activism Nothing about us, without us Most people are unfamiliar with the specific needs and issues faced by people affected by young onset dementia and their families. It is important therefore that their needs are included in projects, policies and campaigns that shape dementia services and it is vital that they are involved […]
The memory clinic and genomic medicine by Dr Nick Bass I expect you have already heard the term genomic medicine in the news. However, if not you likely will very soon! Genomic medicine can be defined as medical practice that uses information from the whole of our DNA (our genome) to improve healthcare. This is […]
Intensi-tea On Wednesday 19th May 2021, we continued our series of young onset dementia webinars, Intensi-tea – stress and distress in dementia. The webinar helped the audience to understand why a person living with young onset dementia may experience increased feelings of stress and distress, and how you might help them manage these feelings. Panellists […]
Continui-tea and Stabili-tea On Wednesday 17th March 2021, we continued our series of young onset dementia webinars with Continui-tea and Stabili-tea – the importance of supporting families affected by young onset dementia. Jules Knight, Consultant Admiral Nurse, Dementia UK and Lizzie Harrison, Admiral Nurse for Younger People with Dementia Services at Berkshire Healthcare NHS Foundation Trust […]
Eight key needs of people with young onset dementia and family members As part of The Angela Project, a three-year long young onset dementia research study, the team asked people living with young onset dementia and family supporters to tell them about services they had found helpful. They received over 850 examples. They analysed these […]
Decision-making guide for GPs The Young Dementia Network has developed a Decision-making guide for GPs, endorsed by the Royal College of GPs, to aid the recognition of the symptoms of dementia in younger people. About the Decision-making guide for GPs The Young Dementia Network worked with GPs to create this guide because accurate and timely […]
Information about the Young Dementia Network, including its purpose and objectives, activities and impact and members
Working together to support children and young people affected by parental young onset dementia During our webinar on Tuesday 19th November 2024 between 12-1pm, Hannah Gardner, Dementia UK’s Consultant Admiral Nurse for Children and Young People and Dr Patricia Masterson-Algar, a research fellow and lecturer at Bangor University, will talk about how progress is being […]
Take part in research Research into dementia is receiving more investment as people search for treatments or a cure. You may be asked to, or want to take part in medical or social research, and there are a number of ways you can become involved. You might want to take part in a drug trial, […]
