Here you will find a collection of completed research studies relating to post-diagnostic support. They have been selected by Dr Jenny La Fontaine, Senior Research Fellow, University of Bradford. Some of the links we provide are to the abstract only. For a full paper it may be necessary to subscribe to the site or to […]
We have created a series of infographics sharing a range of information and facts and figures about young onset dementia. Please feel free to use these graphics in your presentations and social media posts to help raise awareness of young onset dementia.
Here you will find a collection of young onset dementia research studies related to diagnosis and prevalence data. Some of the links we provide are to the abstract only. For a full paper it may be necessary to subscribe to the site or to pay a fee. Prevalence Diagnosis
Member showcase: Emily Ong Peer support for people with dementia is a relatively new concept in Asia, except for countries like Japan and Taiwan. The approach to dementia care can be quite paternalistic, and people with dementia are passive recipients of care. Thus, the focus is on keeping the people with dementia occupied and engaged […]
Here you will find a collection of young onset dementia research studies related to The Angela Project. The Angela Project was a three-year long research study; the largest study of young onset dementia carried out in the UK. The key findings and recommendations can be found in this publication, Good practice in young onset dementia […]
Dementia is caused by different diseases that damage the brain and lead to a progressive decline in a person’s ability to think, reason, communicate and remember. Their personality, behaviour and mood can also be affected. Everyone’s experience of dementia is unique – symptoms and the progression of the condition varies. Dementia is described as […]
Here you will find a collection of young onset dementia research studies related to employment and work. They have been selected by Dr Andrea Mayrhofer, Senior Research Fellow, Newcastle University, Dr Louise Ritchie, Reader in Dementia (Research), University of the West of Scotland and Dr. Laura Lebec, Research Fellow, University of the West of Scotland. […]
Simple guide to research This introductory guide is to help you find and understand research on young onset dementia. We want to make sure that the research is easy to read and digest. We hope this results in the research and its conclusions being used well to develop good support. The Young Dementia Network research […]
As with dementia generally, there is conflicting information about the prevalence of young onset dementia. The difficulties of diagnosing the condition at working-age mean popularly used statistics are likely to be inaccurate and do not reflect the true number of people who are affected. The facts and figures stated below relate to the UK. […]
The Young Dementia Network is an online influencing community and works to increase knowledge, understanding and awareness of young onset dementia. It connects and signposts to services but does not directly provide support. Our hosts, Dementia UK, and a number of our member organisations provide support and information around young onset dementia. Find out more […]
