Young onset dementia: guidance for dementia support roles This guidance is primarily for dementia advisors, support workers and key workers who may not usually support people living with dementia under the age of 65 years old. It is intended to guide discussion with the person with young onset dementia and their families and should be […]
Young onset dementia ID cards The Young Dementia Network’s young onset dementia ID cards were created in collaboration with our members. There are two designs – one for people living with young onset dementia, the other for family members and supporters. We have received excellent feedback from people who use the cards regularly when they go […]
GP surgery leaflet The Young Dementia Network’s GP surgery leaflet is intended to inform people who have concerns about young onset dementia about the organisations that may be able to offer them support and information. We hope this leaflet, suitable for use in GP surgeries and other clinical settings, will help to raise awareness of young onset dementia […]
Tessa Gutteridge Programme Director for Young Onset Dementia, Dementia UK Motivated by family experience of dementia, Tessa has focused on young onset dementia for more than two decades. As the driving force behind YoungDementia UK, the first national charity for young onset dementia, Tessa led the creation of a range of award-winning services. Following a […]
The Dementia and Hope publication published in January 2023, prepared by Philly Hare states, “We must focus not only on the medical aspects of dementia, but also on the many other barriers which disable those affected. We must address these societal and environmental barriers proactively, thinking more about rights, citizenship, inclusion and equality. In this […]
Normali-tea On Wednesday 21st July 2021, we continued our series of young onset dementia webinars with Normali-tea – adapting to the easing of Covid restrictions. This webinar was panel a discussion between the PACE (Positive Activists Consultants and Educators) group, part of Young Dementia Oxfordshire, who are all younger people who live with a dementia […]
Genetic testing – Memory clinics and the NHS England Genomic Medicine Service Increasing awareness and opportunities for genetic testing – memory clinics and the NHS England Genomic Medicine Service Our webinar in November 2023 was led by Dr Nick Bass, Honorary Consultant Psychiatrist, UCL Division of Psychiatry, Tower Hamlets Memory Clinic, East London NHS Foundation […]
Mind the gap: navigating young onset dementia from pre-diagnosis onwards Dementia Forward has delivered a young onset dementia support service across North Yorkshire for over 10 years. Initially focusing on outward-bound respite days, the service has grown to provide age-specific support, advice and information and the team is now working to improve the availability of […]
Our webinars In October 2022, we started a series of webinars focusing on improving the experience of diagnosis for younger people with dementia and their families. Our aim is to facilitate the sharing of knowledge and experience amongst professionals to improve understanding of issues relating to the experience of young onset diagnosis, how those issues […]
Improving diagnosis experience webinars
