Current research studies

Taking part in young onset dementia research can provide an opportunity for people whose lives are affected by young onset dementia to contribute to the future of dementia care and treatment and to make a positive difference.

Listed below are some dementia research opportunities that may be of interest:

Are you an adult from an ethnic minority background with young onset dementia or an unpaid carer?

Researchers from the University of Liverpool are conducting interviews about the experience of receiving a diagnosis of young onset dementia and accessing care. Interviews will last up to 60 minutes, online or face to face at a time to suit you. If you would like more information, or to get involved. email Fiona Lowe at filowe@liverpool.ac.uk
(May 2024)

Help develop digital resources to support children and young people affected by dementia

Researchers at the University of East Anglia are working on a project called CareCoach.  They are recruiting children and young people aged up to 15 and dementia professionals to take part in a research study (interview and workshops) to help them create web resources to support children and young people who are in regular contact with a person, for example a family member, who is living with dementia. Read more about the study here. Follow the study on Instagram here and X/Twitter here.
(May 2024)

Women’s experiences of young onset dementia and career development

Rachel Allen, a PhD student at the University of the West of Scotland, is conducting a research study about young onset dementia and career development, focusing on women’s experiences. She is seeking to interview women diagnosed with dementia under the age of 65 and women over 65 who developed dementia before this age. Participation involves an initial chat to discuss the research and an online interview. For more information about the study email rachel.allen@uws.ac.uk.
(March 2024)

Creating resources to support people with dementia to use social media

Researchers at Bournemouth University are designing training and resources to help people with dementia (and the family carers who support them) to use social media safely and effectively. They are looking for people with a dementia diagnosis, or carers of people with a dementia diagnosis, to take part in an online survey and interviews to help design the content, format and delivery of these training resources. If you are interested in taking part please click here, or email ctalbot@bournemouth.ac.uk for more information.
(March 2024)

Do you want to trial an app to help build habits and maintain your independence?

Instinctively, a small team at consultancy Else London, is partnering with Alzheimer’s Society to help test an app which aims to remove barriers to independence for people living with dementia and lighten the load for their supporters. They are looking for participants for a six-week trial starting in March 2024. Please email dementia@elselondon.com using the subject ‘Interested’ for more information or complete this survey.
(February 2024)

Research study about the psychological impact on children experiencing parental young onset dementia

Researchers at the University of Liverpool are looking for people with a young onset dementia diagnosis, or their partners and children for a research study about the psychological impact on children experiencing parental young onset dementia. Click here to see a flyer with more information or to take part or find out more emailicarlin@liverpool.ac.uk.
(January 2024)

DYNAMIC (Dementia at YouNger Ages – Mapping Ideal Care): Improving social care for people with young onset dementia and their families

DYNAMIC (Dementia at YouNger Ages – Mapping Ideal Care): Improving social care for people with young onset dementia and their familiesThe Young Dementia Network is proud to support the University of Bradford’s DYNAMIC study which aims to identify, prioritise and produce recommendations and resources to address improvements in social care for people with young onset dementia and their families. For more information contact Professor Jan Oyebode, email j.oyebode@bradford.ac.uk

For more dementia research opportunities, please visit Join Dementia Research.