Share young onset dementia research
Do you know of a young onset dementia research study for inclusion in this collection?
Here you will find a collection of young onset dementia research studies related to employment and work. They have been selected by Dr Andrea Mayrhofer, Senior Research Fellow, Newcastle University, Dr Louise Ritchie, Reader in Dementia (Research), University of the West of Scotland and Dr. Laura Lebec, Research Fellow, University of the West of Scotland. Some of the links we provide are to the abstract only. For a full paper it may be necessary to subscribe to the site or to pay a fee.
This study is an in-depth exploration of the unfolding experiences of five persons who developed dementia while still in paid work/employment, and of their significant others. It explores how they experienced the actions and decisions taken with respect to work, and what the consequences meant to them. Click here
This study explores the specific impact that young onset dementia has on continued employment and finances. Click here
This paper presents a two-part study involving interviews and participatory sessions to begin to understand the workplace experiences and the role of technology among people living with MCI/EOD. Findings are presented from working with seven people with MCI/EOD and two care partners to explore technology design. Click here
This inter-disciplinary study was to explore how working-age people living with dementia seek to influence their lives, and what makes it easier or more difficult for them in their everyday life. Click here
This paper focuses on the financial impact of a diagnosis of young onset dementia. The findings highlight aspects of the financial consequences of a diagnosis of young onset dementia for individuals and families. Click here
This study explores the potential for supporting and promoting the employability of people living with dementia. Click here
This article offers new ways of conceptualising the struggles of disabled workers to continue with their project of self-becoming through work. It shows how work practices can enact violence through ‘non-recognition’ and how workers can subvert this violence to create opportunities for future development. Click here
This study focusses on the significance of meaningful activity; how can such activities be constructed. Click here
A systematic review of the literature concerning young people with dementia who are either in employment or wish to be employed. Eight articles were reviewed which highlighted the need for reasonable adjustments and sheltered employment opportunities to support continued engagement with employment. Click here
Post formal employment: little expectation that a person might continue to work in a different capacity perhaps; implication: lack of opportunities. Click here
Work as therapy. Participants wore staff uniforms to create a sense of identity and to be identifiable as staff for customers. Click here
This paper looks traumatic secession of work; need for purposeful activity; need for increased education and awareness in the workplace. Click here
Demonstration project: Seven people with mild dementia work one day per week beside a work-buddy in a large metropolitan hardware store. Work-buddies are store employees who have undergone dementia training.
Click here
This paper argues that people living with dementia have the right to live as full citizens and have full participation and inclusion in all aspects of life. Click here
This research sends out strong messages about the rights and legal position of person living with dementia which cannot be ignored. Click here
This study argues that more attention needs to be given to supporting employees with dementia to either remain in work or exit the workplace, and that career development practice has a key role in this. Click here
The rise in retirement age means that number of people developing dementia whilst in employment will rise. Click here
‘A common finding was that employers appear to lack knowledge to enable them to support people with dementia or cognitive impairment in the workplace.’ Click here
Do you know of a young onset dementia research study for inclusion in this collection?
Taking part in young onset dementia research can provide an opportunity to contribute to the future of dementia care and treatment and to make a positive difference.
An introductory guide to help you find and understand research on young onset dementia.