What is the Young Dementia Network? The Young Dementia Network is an online influencing community working collaboratively to improve lives. Launched in 2016 and driven by first-hand expertise and experience, the Network is now hosted by Dementia UK. People living with young onset dementia and their families are at its heart. Our purpose We want to […]
Member showcase: Dementia Forward’s Young Onset Dementia Awareness Day Services for people affected by young onset dementia Ten years ago, the North Yorkshire charity Dementia Forward began running an outward-bound service for younger people with dementia in the Harrogate area, immediately seeing the difference it made. People became less isolated, were physically active and spent […]
Member showcase: Tony Hall My name is Tony Hall and I live in Bristol. I was a carer for my wife Barbara for over 20 years. She first showed symptoms of young onset frontotemporal dementia in 1999 when she was 53 years old; sadly, she passed away in April 2022. It took us several years […]
Member showcase: Martin Robertson Over the Christmas holidays I relaxed, however my brain began to atrophy as I had no research or campaigning to do. My wife noticed this and mentioned it to me on New Years Day. The following morning, I woke up to find an email timed 2am which turned out to be […]
Keith Oliver – living with young onset dementia, Alzheimer’s Society Ambassador, Kent and Medway PT NHS Dementia Service User Envoy and member of the 3 Nations Dementia Working Group Keith lives in Canterbury, is married to Rosemary and is a former primary school teacher and head teacher. On New Year’s Eve 2010 aged 55, his […]
Request our resources Please complete this form to order copies of the Young Dementia Network resources. Our resources are free of charge – so please only order the amount you need. They are also free to download from our website. If you require more than the maximum quantity specified, please contact youngdementianetwork@dementiauk.org with the amount […]
Here you will find a collection of young onset dementia research studies related to genetics. They have been selected by Dr Janet Carter, Consultant Psychiatrist, North-East London Foundation Trust and Dr Hilda Hayo, Dementia UK. Some of the links we provide are to the abstract only. For a full paper it may be necessary to […]
Emma Crozier Family member Emma and her family’s experience of her dad’s young onset Alzheimer’s disease drives her passion to build understanding of young onset dementia, reduce stigma and improve age-appropriate services so that people can access the support they need. Emma spent over 20 years in health communications, working to improve recognition of a […]
Nikki Zimmermann Direct Support Services Lead, Rare Dementia Support Nikki joined Rare Dementia Support at University College London (UCL), at the beginning of 2019 after working for the Alzheimer’s Society for the previous seven years. Her academic background is in Public Health and she has personal experience as her father had young onset Alzheimer’s disease. […]
Our future plans The Young Dementia Network is keen to ensure its priorities and activities over the next three years have the greatest impact in line with the Network’s overall purpose. This plan is informed by: Future activities and projects We have identified a range of possible future activities and projects which includes:
