Young onset dementia and general practice – identifying symptoms before diagnosis This webinar focused on the first symptoms of young onset dementia, how to increase their recognition and better identify people with young onset dementia at an earlier stage. There are over 70,8000 people estimated to be living with young onset dementia in the UK, […]
Influencing and activism Nothing about us, without us Most people are unfamiliar with the specific needs and issues faced by people affected by young onset dementia and their families. It is important therefore that their needs are included in projects, policies and campaigns that shape dementia services and it is vital that they are involved […]
The memory clinic and genomic medicine by Dr Nick Bass I expect you have already heard the term genomic medicine in the news. However, if not you likely will very soon! Genomic medicine can be defined as medical practice that uses information from the whole of our DNA (our genome) to improve healthcare. This is […]
The Dementia and Hope publication published in January 2023, prepared by Philly Hare states, “We must focus not only on the medical aspects of dementia, but also on the many other barriers which disable those affected. We must address these societal and environmental barriers proactively, thinking more about rights, citizenship, inclusion and equality. In this […]
Dementia and Hope – for professionals Dementia and Hope is a vision created with, and for, people who are living with dementia. There are things we can all do to make people’s lives more hopeful.  It helps to look beyond the condition itself and its symptoms. Social attitudes and ignorance, employment practices and the physical […]
The Young Dementia Network provides opportunities for its members to collaborate and share personal and professional experience and knowledge. There are a number of ways that you can get involved including:  promoting  joining the Network and our resources to your family, friends and colleagues following and engaging with us on our social media channels: Facebook, LinkedIn and […]
Member showcase: Tony Hall My name is Tony Hall and I live in Bristol. I was a carer for my wife Barbara for over 20 years. She first showed symptoms of young onset frontotemporal dementia in 1999 when she was 53 years old; sadly, she passed away in April 2022. It took us several years […]
Jan Oyebode Professor of Dementia Care, Faculty of Dementia Studies, University of Bradford Jan Oyebode is Professor of Dementia Care at the Centre for Applied Dementia Studies, University of Bradford, having spent her earlier career as a clinical psychologist in the NHS. Her current research interests focus on relationships, coping with life with dementia, and […]
Dr Susan Mitchell – Head of Policy, Alzheimer’s Research UK​ Susan is Head of Policy at Alzheimer’s Research UK. She is part of the policy and public affairs team at the UK’s leading dementia research charity and manages the development of evidence-based policy to support progress in dementia research across the field. Susan leads several […]
Young onset dementia – changing perceptions of diagnosis This webinar was led by Dr Susan Mitchell, Head of Policy at Alzheimer’s Research UK, alongside a panel of experts. We considered how the preferences of people living with dementia, a shifting political landscape and advances in research and drug discovery can help the dementia diagnosis pathway […]
