Member showcase: Dementia Forward’s Young Onset Dementia Awareness Day Services for people affected by young onset dementia Ten years ago, the North Yorkshire charity Dementia Forward began running an outward-bound service for younger people with dementia in the Harrogate area, immediately seeing the difference it made. People became less isolated, were physically active and spent […]
Young onset dementia group guidance We are often contacted by people who are interested in setting up a group for people affected by young onset who are looking for advice and guidance. Age-appropriate dementia support is lacking in many parts of the UK so we are very keen to encourage people to start up groups […]
Diagnostic clinic leaflet Young Dementia Network members told us that at the point of their diagnosis many of them were not offered any information and did not know who to contact for support and advice. So we collaborated with people with young onset dementia, their family members and professionals who work within the field to […]
Young onset dementia ID cards The Young Dementia Network’s young onset dementia ID cards were created in collaboration with our members. There are two designs – one for people living with young onset dementia, the other for family members and supporters. We have received excellent feedback from people who use the cards regularly when they go […]
Improving the experience of diagnosis These checklists have been created using the recommendations from The Angela Project, the largest study of young onset dementia carried out in the UK. They are designed to help improve the experience of diagnosis.  One diagnosis experience checklist is for use by people who may have young onset dementia […]
GP surgery leaflet The Young Dementia Network’s GP surgery leaflet is intended to inform people who have concerns about young onset dementia about the organisations that may be able to offer them support and information. We hope this leaflet, suitable for use in GP surgeries and other clinical settings, will help to raise awareness of young onset dementia […]
Mind the gap: navigating young onset dementia from pre-diagnosis onwards Dementia Forward has delivered a young onset dementia support service across North Yorkshire for over 10 years. Initially focusing on outward-bound respite days, the service has grown to provide age-specific support, advice and information and the team is now working to improve the availability of […]
Our newsletters The Young Dementia Network sends out regular e-newsletters – usually monthly – that feature news from the Network and its members, as well as young onset dementia related news, information, research and other items of interest. You can view past issues of Young Dementia Network News via the links below.
Tailored memory clinic care – using the diagnosis process as a starting point for person-centred young onset dementia support The Young Dementia Network and the Young Onset Dementia Knowledge Center, Netherlands are pleased to be working together on a new webinar programme. We want to offer opportunities to learn, share and connect to international audiences […]
Working together to support children and young people affected by parental young onset dementia During our webinar on Tuesday 19th November 2024 between 12-1pm, Hannah Gardner, Dementia UK’s Consultant Admiral Nurse for Children and Young People and Dr Patricia Masterson-Algar, a research fellow and lecturer at Bangor University, will talk about how progress is being […]
