The current situation In the UK very few people with young onset dementia and their families experience a high standard of diagnosis and support throughout their lives. Very few, as the condition progresses, can rely on care that works well for them and their family at home and if an alternative is needed, appropriate care […]
We want to increase the membership of the Young Dementia Network so that we can have a greater impact, increase awareness of young onset dementia and connect with more people.  In order to do this, we would really appreciate your help in sharing the links and information below with your family, friends, work colleagues and networks. The […]
Here you will find a collection of young onset dementia research studies related to genetics. They have been selected by Dr Janet Carter, Consultant Psychiatrist, North-East London Foundation Trust and Dr Hilda Hayo, Dementia UK. Some of the links we provide are to the abstract only. For a full paper it may be necessary to […]
Member showcase: Dr Hilda Hayo Hilda Hayo recently celebrated her 10th anniversary as Chief Admiral Nurse and CEO of Dementia UK. She is also a founding member of the Young Dementia Network steering group which was created in 2016. Hilda’s grandfather lived with young onset dementia and because of him and her family’s experiences of […]
Member showcase: Julie Hayden I’m Julie Hayden, and I was diagnosed with young onset dementia back in May 2017 at the age of 54. I’ve been so fortunate in the connections I’ve made over the years since then and the amazing people I’ve had the opportunity to work with. I’m taking the time now to […]
Request our resources Please complete this form to order copies of the Young Dementia Network resources. Our resources are free of charge – so please only order the amount you need. They are also free to download from our website. If you require more than the maximum quantity specified, please contact youngdementianetwork@dementiauk.org with the amount […]
Eight key needs of people with young onset dementia and family members As part of The Angela Project, a three-year long young onset dementia research study, the team asked people living with young onset dementia and family supporters to tell them about services they had found helpful. They received over 850 examples. They analysed these […]
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Member showcase: Martin Robertson Over the Christmas holidays I relaxed, however my brain began to atrophy as I had no research or campaigning to do. My wife noticed this and mentioned it to me on New Years Day. The following morning, I woke up to find an email timed 2am which turned out to be […]
Our membership The Young Dementia Network has over 5,300 members:Â Our professional members work within organisations in the UK including: As well as health and social care services and trusts in England, Scotland, Wales and Northern Ireland. Why do people join the Network? The most common reasons for joining are:
