Research blog: How important is hope to younger people living with dementia? Dr Jane Pritchard, Consultant Admiral Nurse, The Good Care Group Jane has worked in the care industry since 2001 and in her current role since 2016. As The Good Care Group’s dedicated in-house Admiral Nurse, Jane provides support and insight into the care […]
Here you will find a collection of young onset dementia research studies related to employment and work. They have been selected by Dr Andrea Mayrhofer, Senior Research Fellow, Newcastle University, Dr Louise Ritchie, Reader in Dementia (Research), University of the West of Scotland and Dr. Laura Lebec, Research Fellow, University of the West of Scotland. […]
Dementia is caused by different diseases that damage the brain and lead to a progressive decline in a person’s ability to think, reason, communicate and remember. Their personality, behaviour and mood can also be affected. Everyone’s experience of dementia is unique – symptoms and the progression of the condition varies. Dementia is described as […]
Laura Phipps – Head of Communications, Alzheimer’s Research UK​ and Director of External Affairs, Early Detection of Neurodegenerative diseases (EDoN) Laura Phipps is Head of Communications at Alzheimer’s Research UK. She leads a multidisciplinary department across PR and media, human stories, science communication, insight and messaging development, and oversees the delivery of communications campaigns. She […]
Gaining an accurate understanding of how many people are affected by young onset dementia is challenging for a number of reasons including: Although improvements are underway, the numbers of people with young onset dementia are likely to be an underestimate. Young onset dementia diagnosis rate in England Prevalence of young onset dementia    Length of time […]
Member showcase: Keith Oliver My involvement in the new Reconsidering dementia book series published by Open University Press grew from my contribution to a book published in 2019 in which I co-authored a commentary about Tom Kitwood in chapter five. It contained the Kitwood flower, a model I use to live my life, and which served to […]
Member showcase: Emily Ong Peer support for people with dementia is a relatively new concept in Asia, except for countries like Japan and Taiwan. The approach to dementia care can be quite paternalistic, and people with dementia are passive recipients of care. Thus, the focus is on keeping the people with dementia occupied and engaged […]
Here you will find a collection of young onset dementia research studies related to learning disabilities. They have been selected by Dr Hilda Hayo from Dementia UK and Professor Jan Oyebode from the University of Bradford. Some of the links we provide are to the abstract only. For a full paper it may be necessary […]
Here you will find a collection of young onset dementia research studies related to children and young people. They have been selected by Professor Pat Sikes from the University of Sheffield and Dr Mel Hall from Manchester Metropolitan University. Some of the links we provide are to the abstract only. For a full paper it may […]
Good practice in young onset dementia What was The Angela Project? The Angela Project was a three-year research study carried out in 2016-late 2019 by the universities of Bradford, Northampton, Surrey and UCL, funded by the Alzheimer’s Society, and in partnership with Dementia UK and YoungDementia UK. It was the largest study of young onset […]
