Jacqueline Parkes Professor of Applied Mental Health, Dementia Research and Innovation Centre, University of Northampton Jackie is an experienced mental health nurse, and has worked in a broad range of mental health and learning disability settings prior to moving into Higher Education. She is the the Lead for the University of Northampton Dementia Research and […]
Young onset dementia: guidance for dementia support roles This guidance is primarily for dementia advisors, support workers and key workers who may not usually support people living with dementia under the age of 65 years old. It is intended to guide discussion with the person with young onset dementia and their families and should be […]
Decision-making guide for GPs The Young Dementia Network has developed a Decision-making guide for GPs, endorsed by the Royal College of GPs, to aid the recognition of the symptoms of dementia in younger people. About the Decision-making guide for GPs The Young Dementia Network worked with GPs to create this guide because accurate and timely […]
Young onset dementia pathway An outline of our recommendations The young onset dementia pathway brings together the experience of people affected by young onset dementia and the people who work with and support them. Â It shows that the impact of dementia can be very different depending on your stage of life and that because of […]
In January 2024 we ran a month-long campaign across the Young Dementia Network communications platforms (email, website and social media) inviting members and followers to ‘share their experiences’ of young onset dementia. We asked people to reply to three questions: Do you feel that young onset dementia has taken anything away from your life? Has […]
Isolde Radford Policy Manager, Alzheimer’s Research UK Isolde is a Policy Manager in the Policy and Public Affairs Team at Alzheimer’s Research UK, the UK’s leading dementia research charity, developing evidence-based policy to ensure people affected by dementia benefit from progress in research. Isolde has a particular interest in ensuring health systems can adapt to […]
Misdiagnosing dementia: findings from a systematic review on frequency, impacts and experiences Misdiagnosis is one of the key reasons for people with young onset dementia experiencing delays in understanding their symptoms and receiving an accurate diagnosis. During the webinar, Dr Giebel discussed misdiagnosis in dementia and the existing evidence on the topic within the context […]
Michael Booth Living with young onset dementia Former carer for my mom who lived with young onset Alzheimer’s disease for nine years and now myself a person living with young onset Alzheimer’s disease giving me a view from both sides, a unique position. A Research Network volunteer and a member of the Policy, Research and […]
