Building knowledge through research  

Improving the lives of people affected by young onset dementia depends on authoritative and credible evidence for a case for change.  

The Young Dementia Network encourages the growth of research and evidence actively by:

• supporting research projects on steering, advisory and stakeholder groups  
• promoting participation of members in research projects using our social media and newsletter 
• facilitating access to research publications curated by experts on our site 
• featuring blogs authored by researchers highlighting new studies 
• transforming research evidence into resources  
• providing a platform to share evidence through the webinar programme

Our involvement in current research studies 

• DYNAMIC – Social care for people living with young onset dementia (2023-2025 NIHR funded) develop recommendations and resources to raise awareness of young onset dementia amongst social care staff and improve strategies to help manage the financial impact of young onset dementia
• Working with Dementia Network Plus (2024-2029 ESRC, Alzheimer Society and NIHR funded) aims to change the understanding of working with dementia and improve the working experience of people with dementia by exploring the personal, workplace, social and economic factors
• DeNPRU– Dementia and neurodegeneration Policy research unit (2024-2027 NIHR funded) provides evidence to support national policy through Department of Health and Social Care
• DEfIN-YD – Dementia Experts for Involvement Network – Young Dementia provides a young onset dementia public and patient involvement network with opportunities to be involved in research, identify areas for research and provide a reference group to support researchers developing projects