Our activities and plans

Activities

The Young Dementia Network’s current activities include:

• strengthening the voice of people affected by young onset dementia 
• collaboratively developing and disseminating a framework for a ‘Young onset dementia pathway’ for local areas including national standards 
• hosting a series of young onset dementia focused webinars  
• creating and promoting our range of resources  
• communicating news and opportunities to be involved regularly with our membership   
• raising the profile of young onset dementia on our social media channels 
• contributing a young onset dementia and Network perspective to research studies, to consultations and to the Department of Health and Social Care Dementia Programme Board  

Plans from 2025

Planning for the Network’s next three to five years is underway. Our determination to improve the lives of people affected by young onset dementia is undiminished.  

• Nearly 200 people affected by young onset dementia and professionals contributed to a strategy survey to declare their priorities for action 
• Over 20 individual and group discussions, including with the Network steering group, workstream members and host Dementia UK have informed the plans

Future collaborative activities and projects include:    

• Creating nationally recognised standards for young onset dementia services  
• Improving young onset dementia service commissioning and development  

Activities will be posted here as soon as they are confirmed.