Young onset dementia group guidance

Suggestions and ideas for creating groups to support people affected by young onset dementia.

Age-appropriate dementia support is lacking in many parts of the UK so we are very keen to encourage people to start up groups that will cater specifically for people aged under 65.

Based on our experience, we have put together guidance which shares suggestions and ideas to help others who are considering starting up groups, either face-to-face or online.

Young onset dementia group guidance booklet

In September 2025 we updated the guidance with the generous help of:

  • Saira Addison, Dementia Services Manager and Young Onset Dementia Activists, Bromley, South-East London Mind
  • Charlie Draper, Younger People with Dementia Berkshire
  • Ruth Ely and the Young Onset Dementia Carers group, tide
  • Lisa Inglis, Young Onset Dementia Advisor, Age UK Oxfordshire