Books written by a person living with young onset

Slow Puncture: Living Well With Dementia

Peter Berry, Deb Bunt, 2020, £9.99 An account of a year in the life of Peter Berry. Happily married and running a successful business in Suffolk, Peter’s life changes when, at the age of fifty, he is diagnosed with young onset dementia. Peter has embarked on a series of challenges to show that ‘life isn’t over with dementia, it’s just a little different’. Peter has raised thousands of pounds for dementia charities including YoungDementia UK, cycling hundreds of miles in his quest to show that life is always worth living. This is an inspirational look at both living in the present and coping with dementia.

The Lupo Stick

Valerie Blumenthal, ISBN 978-0995785304, 2017, £7.93 Set on a small island off Sicily in the late 1950s and in contemporary Oxford, this Italian epic is a tale of identity, family secrets and mystery. Above all, it is a love story. The novel is narrated by Graziella Lupos’s daughter Rosa when Graziella has just been diagnosed with Alzheimer’s disease. The book’s author Valerie Blumenthal is living with Posterior Cortical Atrophy. Read Valerie’s own story here.

Will I Still Be Me?

Christine Bryden, ISBN 97817859255592018, £12.99 Christine Bryden was diagnosed with young onset dementia in 1995, but her experiences do not reflect the mainstream discourse of loss of self while living with dementia. In this book she explains why people with dementia have a meaningful and continuing sense of self and calls for a different understanding of dementia that results in greater inclusion.

Slow Puncture: Living Well With Dementia

Peter Berry, Deb Bunt, 2020, £9.99

An account of a year in the life of Peter Berry. Happily married and running a successful business in Suffolk, Peter’s life changes when, at the age of fifty, he is diagnosed with young onset dementia. Peter has embarked on a series of challenges to show that ‘life isn’t over with dementia, it’s just a little different’. Peter has raised thousands of pounds for dementia charities including YoungDementia UK, cycling hundreds of miles in his quest to show that life is always worth living. This is an inspirational look at both living in the present and coping with dementia.

The Lupo Stick

Valerie Blumenthal, ISBN 978-0995785304, 2017, £7.93

Set on a small island off Sicily in the late 1950s and in contemporary Oxford, this Italian epic is a tale of identity, family secrets and mystery. Above all, it is a love story. The novel is narrated by Graziella Lupos’s daughter Rosa when Graziella has just been diagnosed with Alzheimer’s disease. The book’s author Valerie Blumenthal is living with Posterior Cortical Atrophy. Read Valerie’s own story here.