Phil Angrave
Phil shares how a diagnosis of Lewy body dementia in his 50s ended his 40+ year career as a nurse and senior university lecturer and offers advice to people affected and employers.
I had one-to-one conversations via Teams with the civil servants as they recognise my work as an independent individual, which to me is very empowering.
Martin RobertsonThe Lived Experience Panel had members from the two dementia organisations in Scotland (Alzheimer Scotland and About Dementia) and three independent individuals. Dementia UK was not represented on either panel although being independent I am like a magpie and pick ideas from here and there, so Admiral Nurses will be considered in the implementation phase.
My other two inputs were to highlight mental health and dementia wards, which are rarely talked about by those with young onset dementia for obvious reasons. I also had one-to-one conversations via Teams with the civil servants as they recognise my work as an independent individual, which to me is very empowering.
The plan is for both groups to carry on as Implementation Oversight Groups to ensure that the chosen priorities are met. I am under no illusion that my two inputs will be prioritised, however I can use them as leverage to show that they are important and hopefully help mental health charities receive funding for them.
Phil shares how a diagnosis of Lewy body dementia in his 50s ended his 40+ year career as a nurse and senior university lecturer and offers advice to people affected and employers.
Emily was diagnosed with frontotemporal dementia aged 51. She found little peer support available in her home country of Singapore so set up an online group of her own which caters to English, Chinese and Malay-speaking individuals.
Peter talks about his prize-winning work volunteering with local and national charities to raise awareness of dementia since being diagnosed with Alzheimer’s disease at the age of 64.